It’s 9am on a Friday morning as I sit patiently awaiting an IV so I can begin my monthly infusion. I make small talk with the nurses after taking my routine pregnancy test to ensure my heavy-duty medicine doesn’t harm my apparent unborn child. Unfazed, I ask Jenny how her daughter is and then look around the room to see if any of the other usual suspects are here. Within a few minutes, I have 115 mL of Tysabri being pumped into my veins that will slow down my overactive immune system for next 30 days. As I sit back to begin two hours of frivolous busy work to pass the time, I can’t help but think to myself: This is my new normal. Read more
Today marks my 31st birthday. While there certainly isn’t anything particularly special about this birthday, I am lucky enough to have been gifted the best news… Read more
MS is expensive. I say it so bluntly because there really isn’t any other way to sugarcoat it. Between the MRIs, specialist visits, medicine (both the drug and administration fees), occasional hospital visits, and other related costs (now I have glasses/contacts for my vision issues), it all adds up… quickly.
I don’t know about you but I was curious what it actually was like to get an infusion. Would it be painful? Uncomfortable? How would my body react? Read more