It’s not every day that you can say that you interviewed a professional athlete – let alone a 3x Stanley Cup winner – but, I did just that. Bryan Bickell, formerly of the NHL’s Chicago Blackhawks and the Carolina Hurricanes, was generous enough to share his story and experiences living with multiple sclerosis.
This interview was important to me on several levels – but most importantly, because Bryan Bickell, while a tremendously successful athlete, is still just a normal guy. He’s a 30-something year old dad, husband, and friend, who was just as scared as any of us when he learned the news of his diagnosis. But, instead of hiding behind closed doors, Bryan and his wife Amanda, are opening up and sharing their story, and how they’re helping others in a similar position. It’s no surprise why he’s been coined #BickellBrave Read more
It’s 9am on a Friday morning as I sit patiently awaiting an IV so I can begin my monthly infusion. I make small talk with the nurses after taking my routine pregnancy test to ensure my heavy-duty medicine doesn’t harm my apparent unborn child. Unfazed, I ask Jenny how her daughter is and then look around the room to see if any of the other usual suspects are here. Within a few minutes, I have 115 mL of Tysabri being pumped into my veins that will slow down my overactive immune system for next 30 days. As I sit back to begin two hours of frivolous busy work to pass the time, I can’t help but think to myself: This is my new normal. Read more
Today marks my 31st birthday. While there certainly isn’t anything particularly special about this birthday, I am lucky enough to have been gifted the best news… Read more
MS is expensive. I say it so bluntly because there really isn’t any other way to sugarcoat it. Between the MRIs, specialist visits, medicine (both the drug and administration fees), occasional hospital visits, and other related costs (now I have glasses/contacts for my vision issues), it all adds up… quickly.
I don’t know about you but I was curious what it actually was like to get an infusion. Would it be painful? Uncomfortable? How would my body react? Read more