When the National MS Society asked if I would represent them and the upcoming Walk MS event on 3 television shows, my immediate reaction was… “Holy crap”. No, seriously. I’ve never been on TV before and like most of us, have a bit of a fear of public speaking (especially on live TV!). But, after I let their ask sink in, I knew I had to do it. This would be an opportunity to spread my message further, build awareness for multiple sclerosis AND promote an event I am so passionate about. It was a no-brainer. Read more
The last few weeks have been a little crazy. From 3 TV spots (details coming soon!), to last ditch MS Walk fundraising efforts to publicly launching my new business, I have to admit… I’m tired. Read more
With Walk MS nearly 2 weeks away and only half way to my fundraising goal, I decided to get CREATIVE with fundraising. Thanks to some wonderful friends and the Salesforce recruiting team, we pulled off a bake sale with BIG results – $1,710 in revenue to be exact! Check out all the details. Read more
I recently spent some time on the phone with a woman from D.C. who was diagnosed with MS just 4 weeks ago. Rather than start a medication, she hoped to instead be starting a family with her husband of two years. Read more
2 years have gone by since my MS diagnosis. I remember the day as if it were yesterday. My heart sank when I learned the news and I felt as if I couldn’t breathe. Even writing about it now makes me feel anxious, scared and numb all over again.
I only wish I knew then what I do now, but I am proud to look back at the pledge I made to myself and to know that I’ve kept my promise. This was the hardest thing I’ve ever written but I needed to do it. It helped me accept my position, determine next steps and commit publically that I wouldn’t let my newfound diagnosis overcome me. It’s held me accountable every day since and I hope it will continue to indefinitely. Read more
I’m excited to introduce you all to Dr. Haley Titus, a Neuroimmunologist and Post-Doctoral Fellow at Northwestern University’s Feinberg School of Medicine. She’s also a member of the National MS Society’s Multiple Solutions board (which is how we initially met), a dedicated philanthropist, and has made it her goal in life to help cure MS in her lifetime.
A few months ago, Dr. Haley Titus provided an update to National MS Society board members on the progress that’s been done relating to MS research and lofty goals for a cure. In our interview below, she addresses not only what’s being done to stop MS but also what’s being done to repair the damage that’s already done to those with MS. Currently, there are many medications to stop the progression of the disease but nothing out yet to help repair, so this felt huge to me. I felt so hopeful after that update that I wanted to share her promising updates with the larger community here. Read more
Friends, meet Deanna, a fellow MSer, former colleague and new friend who is an inspiration to the MS community. You’ll never believe what’s she’s up to all in support of finding a cure for this disease! Read more
It’s 9am on a Friday morning as I sit patiently awaiting an IV so I can begin my monthly infusion. I make small talk with the nurses after taking my routine pregnancy test to ensure my heavy-duty medicine doesn’t harm my apparent unborn child. Unfazed, I ask Jenny how her daughter is and then look around the room to see if any of the other usual suspects are here. Within a few minutes, I have 115 mL of Tysabri being pumped into my veins that will slow down my overactive immune system for next 30 days. As I sit back to begin two hours of frivolous busy work to pass the time, I can’t help but think to myself: This is my new normal. Read more