The Women on the Move Luncheon, which supports raising funds for the National MS Society, was the first event I went to just 2 months after my diagnosis with MS. I remember attending the luncheon vividly, as it had such an emotional impact on me. I walked into the ballroom at the Ritz Carlton hotel and was instantly brought to tears. Just a few months before that event, I had walked into that same ballroom but for a very different reason. My entry was to announce our marriage as husband and wife, the happiest of occasions, but this time, I was overwhelmed with fear, sadness and disbelief. How quickly life had changed. Read more
I received this note over the weekend and the message was so inspiring that I felt compelled to share with you all this Monday morning…
“Good for you Angie! I wish you all of the best. You are young and strong. You and your doctor should be able to control of your disease very effectively. You would be short changing yourself and your family to feel anything less than alive, vibrant, and positive.
I have had primary progressive MS for 16 years and I have become severely disabled. I get in and out of bed, on and off the toilet, in and out of the shower with a ceiling track system and someone to help me. I don’t have to worry about making it to the bathroom on time because I have a “upra-pubic” catheter that drains into a bag belted around my calf. All of that and even more!
Yet through all of it, I wake up with a purpose every morning, a smile on my face, and a kiss from my wife. It is what it is. It becomes what I make of it.”
Thank you, Joe, for putting life in perspective today.
Let’s all make the most of Joe’s message and remind ourselves to take a step back to realize how good we really have it. Joe is an example to us all that a positive attitude truly is everything.
Have a good week, everyone!
Walk MS Chicago was last Sunday, April 30, and I can proudly report that we raised close to $25K! This was a huge accomplishment that was only made possible because of the kindness and generosity of you guys, so thank you. Read more
When the National MS Society asked if I would represent them and the upcoming Walk MS event on 3 television shows, my immediate reaction was… “Holy crap”. No, seriously. I’ve never been on TV before and like most of us, have a bit of a fear of public speaking (especially on live TV!). But, after I let their ask sink in, I knew I had to do it. This would be an opportunity to spread my message further, build awareness for multiple sclerosis AND promote an event I am so passionate about. It was a no-brainer. Read more
The last few weeks have been a little crazy. From 3 TV spots (details coming soon!), to last ditch MS Walk fundraising efforts to publicly launching my new business, I have to admit… I’m tired. Read more
With Walk MS nearly 2 weeks away and only half way to my fundraising goal, I decided to get CREATIVE with fundraising. Thanks to some wonderful friends and the Salesforce recruiting team, we pulled off a bake sale with BIG results – $1,710 in revenue to be exact! Check out all the details. Read more
I recently spent some time on the phone with a woman from D.C. who was diagnosed with MS just 4 weeks ago. Rather than start a medication, she hoped to instead be starting a family with her husband of two years. Read more
2 years have gone by since my MS diagnosis. I remember the day as if it were yesterday. My heart sank when I learned the news and I felt as if I couldn’t breathe. Even writing about it now makes me feel anxious, scared and numb all over again.
I only wish I knew then what I do now, but I am proud to look back at the pledge I made to myself and to know that I’ve kept my promise. This was the hardest thing I’ve ever written but I needed to do it. It helped me accept my position, determine next steps and commit publically that I wouldn’t let my newfound diagnosis overcome me. It’s held me accountable every day since and I hope it will continue to indefinitely. Read more